Dying To Live

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A quest for answers...........

We are here to share a story of a young mother who lost her life just one day after giving birth to a baby boy via c-section, we were misguided towards lupus as the cause.

A tribute to Kimmy     

 
 
Donate to Research at EDS Network CARES, Inc. for projects, see Research page.

 EDS Video representing some of our sons battle with Ehlers-Danlos type IV.  



        

 

A RARE INSIGHT NEWSLETTER FOR RARE DISORDERS

 

         

Happy "15th" Birthday London!

Ehlers-Danlos Syndrome
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